Beta thalassemia: Punjab has around 1.5 million carriers

An estimated 4700 patients with thalassemia major

 Two day event successfully spread the awareness message 

Mohali: 8th May 2024: (Punjab Screen Desk)::

Dr. B.R. Ambedkar State Institute of Medical Sciences observed “World Thalassemia Day 2024” with a two day event from 7-8 May 2024. The theme for this year is "Empowering Lives, Embracing Progress: Equitable and Accessible Thalassemia Treatment for All." 

Ms. Alka Chaudhary, a thalassemia warrior and social activist shared her journey with thalassemia which has been one of resilience, courage, and hope. Despite the challenges she faces daily, she approaches life with a smile and determination. 

Through her lived experience, Ms. Alka advocated for greater awareness, support, and understanding for those living with thalassemia. 

Dr Reena Das, Professor and Head, Department of Hematology, PGIMER was also invited for a guest lecture for MBBS students. She emphasized on the prevention of the disease through genetic screening and prenatal counselling as the treatment for major thalassemia can be exceedingly expensive and may involve stem cell transplants. So, spreading awareness among local people plays a pivotal role. 

Dr. Bhavneet Bharti, the Director Principal of the institute and a devoted regular blood donor herself, delivered a compelling message on early detection, need for fairness and inclusivity in healthcare, striving to empower individuals affected by thalassemia and promote advancements in treatment options. 

Dr Rashi Garg, Professor, Department of Pathology, AIMS informed that Punjab has around 1.5 million carriers with beta thalassemia (3.96%), and an estimated 4700 patients with beta thalassemia major. 

Dr Tanupriya Bindal, Assistant Professor, Department of Pathology raised awareness about continual blood transfusions, and chelation therapy required by the Thalassemia major patients. She underscored the importance of ensuring the availability, affordability, and accessibility of blood for all thalassemics.

“Aasha ki Kiran” from CMC Ludhiana

Wednesday 30th March 2022 at 4:51 PM

 Seminar of Thalassemia cure by transplant at CMC  

Govt. supported Thalassaemia Bal Sewa Yojna, of Rs. 10 Lakhs per patient

Ludhiana: 30th March 2022: (Kartika Singh//Punjab Screen)

Date: Wednesday, 30th March 2022

Venue: Guy Constable Hospital Auditorium, 

Christian Medical College and Hospital, Ludhiana

The Department of Clinical Haematology, Haemato-Oncology and Bone Marrow (Stem cell) Transplantation, of Christian Medical College & Hospital, Ludhiana, organized a hybrid, one-day Seminar and awareness program, aptly named “Aasha ki Kiran”. The program was arranged to give hope, optimism and confidence to both patients and family members, that Thalassemia can be cured by the Stem Cell Transplant Process. 

The Department was established in 2007 and the Transplant Program started in 2008. So far, the Institution has performed more than 210 transplants, with 83 transplants for Thalassaemia patients. 

Thalassemia is a genetic disorder that requires lifelong blood transfusions. An estimated 10,000 Thalassemia major children are born every year in India. Stem Cell transplantation can offer a lifetime cure in such Patients. 

More than 100 Thalassemia Patients and caregivers from various districts of Punjab, Haryana and Gujarat, attended this Event.  Most of the Patients were identified from a free HLA Typing (Human leukocyte antigen) Camp that was held in December at Rajendra Medical College & Hospital, Patiala. 

The Director of Christian Medical College & Hospital, Ludhiana, Dr. William Bhatti, opened the event by welcoming the Chief Guest Dr Praveen Sobti. He reiterated the vision and mission of CMC Ludhiana. 

The Chief Guest, Dr. Parveen C. Sobti, who established Thalassaemia Care, especially in Ludhiana and Punjab, emphasized that the results of CMC Ludhiana was at par to similar to best centers in India and abroad.  

Mrs Shobha Tuli, Founder member of Thalassaemics India, currently serving as Secretary of the Board of Directors of Thalassaemics India, shared her wisdom and appreciated the efforts of CMCL in the field of Stem Cell Transplantation. Established in 1986, Thalassemics India is working zealously across the country, operating in close association with doctors, Govt. authorities, hospitals, medical authorities, blood banks, thalassemia associations, thalassemia NGO’s & Thalassaemia International Federation.

Patients who are waiting for Transplant at CMCL with an HLA identical donor and less than 12 years of age can now avail Rs. 10 lakhs toward transplant through the the Ministry of Health and Family Welfare, who in collaboration with Coal India’s CSR, have funded HSCT (Hematopoietic Stem Cell Transplantation) program, titled “Thalassemia Bal Sewa Yojna”. 

Shri Sai Ram, Director, Coal India Ltd., elaborated on the need of increasing the number of transplants across the country and mentioned that there are a total of 9 centres currently approved by the Board.  

Shri Mangala, IAS, representing the Ministry of Health and Family Welfare, Government of India, who also joined the event virtually, pledged his support and consideration of additional funds, to cover the cost of both pre- and post-transplant care of Transplant patient. 

The Deputy Manager, Ms. Jyothi Jothi K, DKMS BMST Foundation India, an international NGO and prestigious partner of Christian Medical College also joined the proceeding and addressed the gathering.

Dr. M Joseph John – Professor & HOD, Clinical Hematology, CMC Ludhiana, gave an overview of the transplant process and elaborated on the available patient support programs currently available in CMC Ludhiana.

New Thalassemia ward inaugurated at CMC Hospitaln

Fri, Dec 9, 2016 at 4:31 PM

A new 7 bedded ward in the Department of Pediatrics

Ludhiana: 9 December 2016: (Punjab Screen Bureau):

At a well attended function, a new 7 bedded ward in the Department of Pediatrics, Christian Medical College was dedicated to children with Thalassemia by Punjab Thalassemics Welfare Society.  At the inauguration Dr. Abraham G Thomas-Director CMC, Chief Guest, lauded the efforts of all in providing complete care to children with Thalassemia. Dr. Jugesh Chhatwal–Head of Pediatric Department told that the institute is offering Comprehensive Care for Thalassemia from Womb to Wellbeing. The institute is the only medical college in North India which is doing Bone Marrow Transplant for Thalassemia and is affiliated with many Bone Marrow registries comprising of several thousand donors. Dr. Joseph John Head of Clinical Haematology and Stem Cell Transplant said it is now possible to offer Bone Marrow Transplant to virtually all Thalassemic children through a matched unrelated donor.

Dr. Praveen C Sobti–Professor of Pediatrics, expressed deep gratitude to the President and members of Punjab Thalassemics  Welfare Society for their generous donation towards the renovation of the ward. Among those who participated in the event were Dr. William Bhatti-Medical Superintendent, Dr. Bobby John-Principal, Dr. Kim Mammen– Additional Director, CMC, Dr. Shruti Kakkar-Honorary Secretary–Punjab Thalassemics Welfare Society, Members of Zindagi Live, Several faculty members of CMC, Thalassemic children and their families. Dr. Thomas also presented mementos to all the donors and special token of appreciation to Dr. Joseph John, Dr. Amrith Mathew, Dr. Aikaj Jindal, Zindagi Live, President Student’s Council-CMC for significant contribution to the cause of Thalassemia.         

Short Film - Thalassemia

20-07-2009 को अपलोड किया गया

Courtesy:Pocket Films - Short Films Channel//YouTube

A real life story of a girl with thalassaemia. Subscribe Now For A New Short Films Everyday - http://goo.gl/nBAxge
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Example: Sukh Brar's Thalasseamia Walk

Thalassemia. HINDI flv

08-10-2010 को अपलोड किया गया

Courtesy:paras0603//YouTube

Example: Sukh Brar's Thalasseamia Walk

Example: Sukh Brar's Thalasseamia Walk

Join Her: From 1st Jan to 11 Feb 2014

Hello everyone, 

Here is my schedule for upcoming walk and poster ... Please have a look and don't forget to share ...

1

Sukh Brar

1.Jan – Kotkapura To Bariwala -> Muktsar = 30 km ..

2 jan – Muktsat To Malout -> 30 km..
3 jan – Malout To Abohar -> 32 km..
4 jan – Abohar To Fazilka -> 33km.
5 jan – Fazilka To Jalalabad -> 35 km.
6 jan – Jalalabad To Lakho ke Behram -> 32 km.
7 jan - Lakho ke Behram To Firozpur -> 22 km.
8 jan – Firozpur To Zira -> 40 km.
9 jan – Zira To Sarhali -> 37 km.
10 jan – Sarhali To Chabba -> 32 km.

11 jan – Chabba To Amritsar - > 10 km -> Amritsar to jaintpure -> 27 km.
12 jan – jaintpure To Gurdaspur -> 28 km. 
13 jan – Gurdaspur To Dinaanagar -> 32 km.
14 jan – Dinanagar To Pathankot -> 26 km.
15 jan – Pathankot To Bhangala -> 33.6 km.
16 jan – Bhangala To Gardhiwala -> 37 km.
17 jan – Gardhiwala TO Hoshiapur -> 30 km.
18 jan – Hoshiapur To Mahilpur -> 23 km.
19 jan – Mahilpur To Banga -> 24 km.
20 jan – Banga To Balachaur -> 33 km.
21 jan – Balachaur To Ropar -> 27 km.
22 jan – Ropar to Mohail - > 40 km.
23 jan – Mohail To Chandigarh -> 8km to Banur -> 26.9 km.
24 jan – Banur To Patiala -> 40 km
25 jan – Patiala To Fatehgarh sahib -> 32 km
26 jan - Fatehgarh sahib To Manij sahib ,biza -> 30 km 
27 jan – Maniji sahib To Ludhiana -> 30 km.
28 jan – Ludhiana To Phagwara ->40 km .
29 jan and 30 day – Phagwara To Jalandhar -> 24.8 km.
31 jan – Jalandhar To Kapurthal -20 km -> Balehar Kalan -> 10 km.

1 Feb – Balehar Kalan To Nakodar -> 23 km
2 Feb – Nakodar To Bhodiwala -> 29 km
3 Feb – Bhodiwala To Moga -> 25 km.
4 Feb – Moga To Lohara -> 31 km
5 Feb- Lohara To Barnala -> 34.8 km.
6 Feb – Barnala To Joga – >29. Km.
7 Feb – Joga To Mansa -> 22 km.
8 Feb -Mansa To Maiser khana -> 30 km.
9 Feb- Maiser khana To Bathinda – 30 km
10 Feb – Bathinda To Jaitu -> 28 km.
11 Feb – Jaitu To Faridkot -> 30 km……
………End Mine Event