An estimated 4700 patients with thalassemia major
Two day event successfully spread the awareness message
Dr. B.R. Ambedkar State Institute of Medical Sciences observed “World Thalassemia Day 2024” with a two day event from 7-8 May 2024. The theme for this year is "Empowering Lives, Embracing Progress: Equitable and Accessible Thalassemia Treatment for All."
Ms. Alka Chaudhary, a thalassemia warrior and social activist shared her journey with thalassemia which has been one of resilience, courage, and hope. Despite the challenges she faces daily, she approaches life with a smile and determination.
Through her lived experience, Ms. Alka advocated for greater awareness, support, and understanding for those living with thalassemia.
Dr Reena Das, Professor and Head, Department of Hematology, PGIMER was also invited for a guest lecture for MBBS students. She emphasized on the prevention of the disease through genetic screening and prenatal counselling as the treatment for major thalassemia can be exceedingly expensive and may involve stem cell transplants. So, spreading awareness among local people plays a pivotal role.
Dr. Bhavneet Bharti, the Director Principal of the institute and a devoted regular blood donor herself, delivered a compelling message on early detection, need for fairness and inclusivity in healthcare, striving to empower individuals affected by thalassemia and promote advancements in treatment options.
Dr Rashi Garg, Professor, Department of Pathology, AIMS informed that Punjab has around 1.5 million carriers with beta thalassemia (3.96%), and an estimated 4700 patients with beta thalassemia major.
Dr Tanupriya Bindal, Assistant Professor, Department of Pathology raised awareness about continual blood transfusions, and chelation therapy required by the Thalassemia major patients. She underscored the importance of ensuring the availability, affordability, and accessibility of blood for all thalassemics.
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